Youth Directory

Chronic Illness, Migraine Disease, Mental Illness

Equity, Diversity, Inclusion, and Accessibility; Health Systems and Systems Transformation; Inclusive Public Health Policies; Health Equity; Lived Expertise as Knowledge; Child and Youth Health; Youth Engagement; Lived Expertise as Partners in Research; Youth Leadership; Mental Health; Intersectionality and Cultural Competency

Raissa (she/her) is an award-winning social activist and public speaker, who is mostly known for her work around youth engagement in healthcare spaces. Having personally seen how health inequity affects marginalized populations, Raissa continues to advocate for improving accessibility and equity within the pediatric healthcare sector. With her own experience navigating the complex medical system for her multiple chronic illnesses, she is also passionate about disability inclusion practices in health policy and academia. She is currently the Executive Director of the Young Canadians Roundtable on Health. She leads over 70+ youth from across Canada in national child health advocacy and projects and leads collaborations with prominent children’s organizations. In her commitment to health equity, Raissa is also a research student with Our Kids’ Health, where she advises on youth engagement research guidelines and co-leading the Digital Health Youth Fellows Program. The fellows program teaches 20+ BIPOC youth the necessary skills to be health literacy champions and create evidence-based health promotion content tailored to their communities. Raissa is currently pursuing an undergraduate degree in Health Sciences specializing in Population and Public Health at the University of Ottawa. She is also a first-generation immigrant of Indonesian descent raised on the unceded and unsurrendered territory of the Anishinaabe Algonquin Peoples (Ottawa, Ontario). For fun, she likes to try out new foods, overanalyze medical shows, and hand-building pottery!

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Physical Disability (Spastic Cerebral Palsy, Chronic Pain) Mobility Aid User (Power Chair), Neurodivergent (ADHD)

BIPOC/Disabled/Queer Joy, Intersectionality, EDI, Access Needs/Collective Care, Pride/Community, Self Love, Employment, Diversity in Academia, Rest as Resistance

Jay Baldwin (they/them/iel) is a proud black, queer, disabled, neurodivergent, powerhouse, educator and activist for all things human rights, currently based in Ottawa, Canada, born and raised in the GTA. Jay is in the process of getting their Bachelor of Arts honours in women and gender studies with minors in critical race studies and disability studies and they are aiming to graduate by December 2025. Everything Baldwin does stems from their passion and drive to make the world a better and more equitable place for everyone but especially those who are marginalized and stigmatized by society. For instance, they are the admin and creator of the Facebook group: “Disabled, Queer, and Fabulous!” Baldwin started this group in October of 2020 with the aim to provide an online community for disabled, queer people and their supporters to combat isolation in a safe(r), accessible environment away from the pandemic, as well as to allow folks with identities meet up at this intersection to feel seen and heard by individuals who “get it.” Since 2020, this online space has blossomed into a not so small community of 1.2k members worldwide and counting. Jay has a very intersectional mindset/approach to life, and they plan to use it to teach University students, how to be better humans.

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Invisible Disability (suspected Ehlers-Danlos Syndrome)

Child and Youth Care (CYC), Social Work, Employment

Hello! My name is Havalina Barley, my pronouns are she/her and I am a CYC student currently residing in Windsor, Ontario. I am queer and disabled. For an extremely long time I have not been able to find a proper diagnosis and have had my doctor jumping back and forth between diagnoses. Due to my frequent dislocations and subluxations, chronic pain, and family history my doctor has suspected that I have Hypermobile Ehler’s Danlos Syndrome. The closest treatment facility for hEDS is Toronto, which is not very accessible for someone living in Windsor. My goal is to create accessibility within the CYC and Social Work field. I currently work at an all girls group home. I’m an advocate for the youth living within the home and an advocate for youth within the community.

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Mental Illness (Major Depressive Disorder)

Mental Health, EDI, Post-Secondary Accessibility & Accommodations, First-Gen Experiences with Mental Health

My name is Alissa ( she/her) I’m 19 years old originally from Quebec. I live with an invisible disability, and am currently a student at Queen’s University. I often use my personal experiences including disability, income and race to advocate for those in my position through CAMH as a youth advisor. Through my journey in high school, I’ve won awards such as the Horatio Alger Scholarship for youth who have gone through adversity. I’m passionate about EDI, as a youth advisor for CAMH, I often find myself being the only Black Caribbean person in the group of youth advisory so I believe it’s important to highlight Black voices when it comes to mental health advocacy. I am also passionate about making our community more accessible, as a University student, I have found myself advocating for myself many times to professors who do not understand my accommodations or choose not to respect them.

Chronic Illness & Pain, (autoimmune conditions), Invisible & Dynamic Disabilities, Mental Illness (Anxiety, Depression), Neurodivergence

Neurodivergence, Accessibility, Dynamic Disability, Invisible Disability, Intersectionality, Mental Health and Wellness, EDI, Disability Justice, Accessibility in Higher Education, Universal Design, Disability Community, Allyship, Disability Advocacy, Self-care and Community-care, Learning Strategy as a Disabled Student, Sustainable Livelihood as a Disabled Person

Hannah (they/them) is a disability advocate currently based on the lands of the Lək̓ʷəŋən (Songhees and Esquimalt) Peoples in Victoria, BC. Their identity as a multiple disabled (including invisible dynamic disabilities), neurodiverse, trans+, and queer person allow them to bring an equitable, intersectional, and accessible lens into the advocacy work they do. Additionally, they work to bring decolonial practices to the spaces they are involved in. They have a multitude of experience in the higher education sector, both as a student and staff member. They also have a passion for sharing and communicating their knowledge and experience with others in a way that is accessible, student-centred, and in a kind and supportive environment. In 2023 they were awarded the University of Victoria Provost’s Advocacy and Activism Awards in Equity, Diversity and Inclusion, for their work to increase accessibility and reduce barriers across the university campus.

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Chronic Pain/Invisible Disability, Neurodivergence (OCD, suspected ASD), Psychosocial Disability, Mental Illness (Anxiety), Celiac Disease

Post-Secondary Education, Educational Advocacy, Post-Secondary Accessibility & Accommodations, Disability and Chronic Illness, Chronic Pain, Seeking Diagnosis/Healthcare, Science/STEM, Disability in the Workplace, Being and Ally, Resilience, Pride and Community

Grace Clarke (She/They/Elle) is disabled woman from Ottawa, Ontario. As a student, respite care provider and aspiring occupational therapist she seeks to share her experiences to advocate for increased awareness, inclusions and accommodation of disabled people at the individualized and systemic level. Throughout Grace’s undergraduate studies she has spent my time exploring chemistry while developing her skills in disability advocacy after struggling to get her own accommodations. Grace has experience in a variety of public advocacy and speaking roles including consulting on University of Ottawa policies, mentoring a section of an engineering course on accessible designing and giving class talks/recorded trainings regarding lived experience as a disabled scientist in academia. Sitting as the Vice President of Equity for the Science Student Association, Grace also provided a series of Equity trainings with an emphasis on disabilities. She developed a set of emergency communication cards for students that may be unable to verbally communicate that have been implemented across the University. Grace has experience in community building being the head volunteer for the Centre for Students with Disabilities (CSD) at the University of Ottawa. Through her work at the CSD she has worked to create a sensory room, a library pertaining to disability, flexible and accessible workspaces as well as space to come together as a community. She continues to provide individualized support for students with disabilities in managing accommodations and discrimination on campus. Grace hopes to work with you to educate and empower your team to be better self advocates and allies to the disabled community.

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Invisible Disability/Chronic Illness (Ehlers Danlos Syndrome)

Theodicy and Disability Theology, Grief Theology, Healthcare Access and Equity, Accessible Built Environments

My name is Nelani Colletti (she/her). I am an International Relations major at the University of Ottawa, a student intern at Knox Presbyterian Church, and a dedicated disability advocate. Diagnosed with Ehlers-Danlos Syndrome (EDS), I have navigated chronic pain and physical limitations, shaping my passion for advocacy. Navigating life with EDS has been a profound journey. The unpredictability of my condition means I often have to cancel plans or adapt my activities to accommodate sudden changes in my health. Despite these challenges, I have found strength and resilience, discovering new passions and rebuilding my life around what I can do rather than focusing on my limitations. My work focuses on promoting disability theology, theodicy, and grief theology, aiming to create inclusive and supportive environments within religious communities. Overall, my lived experience with EDS and navigating complex healthcare systems has fueled my passion for advocating for inclusivity, accessibility, and improved support for individuals with disabilities. I am committed to raising awareness about the unique challenges faced by those with chronic illnesses and disabilities and working towards a future where everyone has the resources and support they need to thrive.

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ADHD, Learning Disability

Resiliency, Perseverance

Paige Cox is currently enrolled in the Master of Education at Cape Breton University focusing on the Sustainable development goals and creating a brighter and more sustainable future. This is her third degree from the University. She is the recipient of the 2023 Cape Breton Vital Excellence Award for her volunteer work within the community with youth.

Paige’s commitment to her studies and community has earned her the opportunity to represent her program at conferences in Charlottetown in August 2023, Ottawa and Halifax in early 2024, which were partly and fully funded by organizing institutions. Most recently she has spoke at TEDx Cape Breton University and told her story. Demonstrating the power of resiliency when faced with adversity.

Despite facing multiple cognitive disabilities and living with mental illness. Paige, at 27 years old, is navigating her education with great determination. She uses her voice to promote inclusivity and accessibility in all aspects of life, and her accomplishments extend beyond academia.

Paige is a board member of the Cape Breton University Alumni Association Board of Directors currently serving her second term and most recently has joined Young Canadian Roundtable on Health and has been elected as Cape Breton Representative on Nova Scotia child and youth care worker Association. Previously she has severed on the provincial board for dance Nova Scotia and helped advocate for equality in dance across the province.

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Invisible Disability (Fibromyalgia, Chronic Migraines, Traumatic Brain Injury), Mental Illness (Anxiety, Depression) Neurodivergence (OCD)

Accessibility in the Workplace, Chronic Pain, Outdoor Accessibility, Healthcare System Navigation, Self-Advocacy, Trauma-Informed Care, “Invisible” Disability, Accessibility in STEM

Anna (They/She) is a disability advocate focused on community-based advocacy within the workplace and learning institutions. They use their lived experience as a disabled, neurodivergent, and queer person to inform their work identifying accessibility barriers and strategizing solutions. Anna is a student at the University of Ottawa studying Geology with a microprogram in Geomatics and is passionate about furthering accessibility and inclusion within earth sciences. Due to the late diagnosis of their conditions (teens), Anna has navigated life primarily without treatment or accommodations, so they are very aware of living with barriers and advocating for those unable to address their needs. Anna is skilled at identifying and resolving accessibility issues with an inclusive, solutions-focused approach. Their intersecting identities (disabled, neurodivergent, and queer) give them an important voice to consider. Their clear and engaging communication skills and ability to understand and connect with many types of people make them a welcome addition to any team.

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Anxiety, Neurodivergence, OCD, Youth Caregiver, ‘Glass Child’

family experiences of disability, caregiving, parent-sibling relationships, community care, universal opportunity programs, empathetic leadership

Rayne Daprato (she/her) is bisexual and lives with anxiety and OCD. She is currently a full-time student and has experience in various governmental and not-for-profit roles relating to community building. Most of her lived experience when it comes to disability, and the advocacy that comes alongside it, is from her family. Her older brother has cerebral palsy and myotonic dystrophy, is non-verbal and requires 24/7 care, and her mother also has myotonic dystrophy (a degenerative muscle condition). Growing up in a household where the mindset was not “if” something was possible, but “how” meant that Rayne was constantly adapting her thinking around participating in activities and adapting to the challenges that the world threw at her family. As someone who has been classified as a “glass child”, Rayne understands what it is like to create a personal relationship with the word “normal” and further to that, understands what it is like to advocate with others to receive dignified care, in all aspects of life. Most recently, Rayne has been focusing on what it looks like for herself, as an adult who was put in a caregiving role from a very early age, to advocate for her own needs in relationships with family, and friends. Understanding the importance of self-advocacy paired with the strength of knowledge from growing up advocating for her family, Rayne is equipped for diverse situations when it comes to disability advocacy. Although new to formal advocacy work, Rayne is inspired by her brother and the other disability advocates in her life, to help families like hers understand that there is power in their way of living.

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Hard of hearing, muscular dystrophy (FSHD), ADHD, and queerness.

Accessibility in post-secondary education, accessible travel, accessible design, accessibility audits, PWD employment, living with ADHD

Hi! My name is Jodi Riley Ambrose, my pronouns are she/her, and I am a student association executive and lifelong accessibility advocate.

I have lived with a form of muscular dystrophy all my life, and have been a wheelchair user for 4 years now. In my time as a student union executive, I have experienced travel of all sorts in the GTA as well as in air travel, and I have also become quite aware of accessibility barriers on campuses across Ontario.

My experience includes being a member of the Advisory Committee on Accessibility for Waterfront Toronto, a summer accessibility consultant at BDO, and currently serving my second term as President at the Trent Durham Student Association where I have influenced the accessibility of our external advocacy organizations, OUSA and CASA, and have written public policy about student accessibility.

You can find out more and contact me on LinkedIn at /in/jodi-ambrose. I am always happy to talk accessibility and offer insight!

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Invisible Disabillity/Chronic Illness (Fibromyalgia, Arthritis), Learning Disabilities, Mental Illness (Anxiety, Depression) Pediatric-Adult Healthcare Transitions

chronic illness and disability, mental health, resilience and recovery, transitioning through healthcare, learning disabilities, community and support networks, patient rights and advocacy

Introducing Jenna Kedy, a dynamic speaker and emcee whose journey embodies resilience and inspiration. At just 20 years old, Jenna has faced and conquered immense challenges, from battling Juvenile Arthritis since age 11 to surviving septic shock at age 18. Despite facing disabilities, learning difficulties, and mental health struggles, Jenna has emerged as a fierce advocate for the underrepresented, lending her voice to those facing similar obstacles. With two world cheerleading championships to her name, Jenna understands the power of determination and teamwork. Currently pursuing her second year in family studies, she is committed to leveraging her experiences to enact positive change in the world. Beyond academia, Jenna is an active community volunteer and a staunch advocate for patient rights. As an unwavering optimist, Jenna shares her story to inspire others, particularly the youth, to overcome adversity and pursue their dreams. Fueled by her love for animals and endless cups of coffee, Jenna believes in the transformative power of small actions and aims to inspire all people to make a difference in their communities. Get ready to be moved, motivated, and inspired by Jenna Kedy’s powerful message of resilience and hope.

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Physical Disability, Wheelchair User, Chronic Illness (Autoimmune Autonomic Neuropathy), Neurodivergence (Autism Spectrum Disorder), Mental Health (Depression, Post-Traumatic Stress Disorder)

travel with chronic illness/disability, body image and chronic illness, para-sport, patient research engagement, nutrition and disability/chronic illness, mental health in individuals with chronic illness

Trinity Lowthian (she/her) is currently studying dietetics at the University of Ottawa and completing research on pediatric clinical trials. She also does wheelchair fencing for Team Canada and is a 2-time PanAmerican Champion. Impressively, she does all of this fueled by parenteral (IV) nutrition as a result of intestinal failure due to a chronic illness which kept her hospitalized for years as a teenager. Trinity has lived experience as an individual with a disability, having navigated life in a wheelchair since having meningitis in 2022. Her challenging experiences in the healthcare system motivated her to get involved in improving outcomes for other patients. She has been involved in research and patient engagement for several years. Starting as a member of the Youth Advisory Committee for The Canadian Collaborative for Childhood Cannabinoid Therapeutics (C4T) in 2019, Trinity has worked with organizations including the Canadian Institutes of Health Research, the Canadian Nutrition Society and American Society of Parenteral and Enteral Nutrition to increase focus on improving research outcomes that matter to patients. Trinity has spoken at conferences across Canada and the USA, virtually and in person about the importance of engaging youth in research as well as improving mental health and quality of life outcomes in chronically ill patients. She is passionate about enabling others to live their best life and using her story of overcoming obstacles to inspire others.

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Chronic illness, mobility aid user, neurodivergence (autism), mental illness

Neurodivergence, public policy, disability inclusion, digital accessibility, chronic illness, invisible disabilities, patient engagement, mental health, autism

I’m Kate Matesic (any pronouns), a neurodivergent and disabled writer and advocate based in Toronto.

I leverage my lived experience to advocate for the creation of inclusive and accessible social services in Ontario. I am also a writer, producing work focused on disabled storytelling through both fiction and articles and essays. My writing has published in UX Magazine and the My Body, My Story zine by Sick Stories.

Currently, I am a Youth Advisor for Sunnybrook Hospital’s Family Navigation Project (FNP), where I have advised on research and outreach for FNP’s services. I am also an advisor for the Toronto Adolescent & Youth (TAY) Cohort Study at CAMH, advising on youth engagement best practices.

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I am Deaf. I have a Hearing aid on my right ear, and I have a Cochlear Implant in my left ear (I do not use it anymore). I also have Attention Deficit Hyperactivity Disorder, and suffer from Anxiety & Depression.

I am a strong advocate for the Deaf & Hard-of-Hearing community, I am always happy to teach others about the Deaf Community, Deaf Culture, Sign Language, and my experiences as a Deaf person, as well as the challenges many Deaf people face. I am also an extremely passionate advocate for Anti-Bullying, the right to a safe, fair education & the importance of Mental Health. I experienced severe bullying throughout my elementary school life, which impacted me in such a way that I feel that it is important to speak out and share my story so that it doesn’t happen to anyone else.

Hi! My name is Ava! I am Deaf, and I am proud to be Deaf!
I believe in kindness, respect, and love for all. I am silly, weird, and I am not shy to talk about the important things. I use American Sign Language & Lipread, which helps me understand others and communicate.
I am a fierce advocate for disability education, and anti-bullying, two things that are super important to me. Let’s make the world a better place together! <3

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Physical Disability (Cerebral Palsy), Mobility Aid User

universal design, disability in elite and recreational sport, disability in K-12/post-secondary education and accommodations, disability allyship and bias, built environments and architecture, the politics of disability, and disability as a social identifier.

Lily (they/she) is a student, athlete and advocate with cerebral palsy based in Winnipeg, Manitoba and Wolfville, Nova Scotia. Lily is pursuing a degree in Politics from Acadia University, where she also trains as a national-level para swimmer. Sports have always been Lily’s first true love: it is where they found their identity, passion, and her disability community. Lily’s sports-related work is focused on creating inclusive environments and breaking down barriers both in the field of play and within sport organizations themselves. Lily has worked for a variety of sports associations ranging from local clubs and non-profits to provincial Sport organizations. Beyond sport, they are extremely invested in education policy and reform, having worked as a public servant and volunteer for the education sector since the age of 15, including speaking engagements at secondary and post-secondary institutions like Assiniboine Community College and Acadia University. Whether it be in the classroom, on the field of play, or simply in the world, Lily believes that inclusion is created from the ground up with people-focused policy and following through on promises.This means more than just letting people into the room: it means leading a new conversation.

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Chronic Pain (Fibromyalgia, Ankylosing Spondylitis), Mental Illness (Depression, Anxiety, PMDD, Dermatillomania)

chronic illness and disability, mental health, intersectional representation in society and media, EDI

Anna Samson (they/she) is a desi, queer, disabled person living near Toronto, Canada. They are a writer, poet, and an advocate for disability and mental health. They have ankylosing spondylitis, fibromyalgia, and some mental illnesses. They have experienced AS and fibro symptoms since they were a child but it worsened during their teens. Anna now uses a cane full-time and frequently uses a walker. They have a Bachelor of Arts in English and use their writing and communication skills to create content about their conditions and how it affects their life. They are passionate about using their intersectional lived experiences to raise awareness for chronic illnesses, disabilities, and mental health, along with patient engagement in research

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Disability (Blindness)

sports (parasports, integrated sports opportunities), multi-sensory environments, blindness, accessibility

My name is Emilee Schevers (she/her) and I am 22 years old from Kawartha Lakes, Ontario. I was born with a genetic condition that has caused me to be legally blind with extreme light sensitivity and no colour vision. Alongside my sister, I created a social media movement and small business called Tru Faces. It aims to amplify the voices of people with disabilities, connect them to others, and educate the public on disability awareness. Through sharing my own experiences I hope to shed light on the issues faced within the disability community. When I am not engaging in disability advocacy, I am a Registered Early Childhood Educator, Camp Coordinator, pageant queen, tv personality for AMI, athlete and volunteer with many local and national organizations. I am also pursuing my post-graduate certificate in Mental health and Disability Management.

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Neurodivergent (ADHD), mild Traumatic Brain Injury (PCS)

Disability and the law, legislation, accessible communication, EDI/IDEA, intersectionality, allyship, disability justice, navigating post-secondary as a disabled student/student with a disability, employment, universal design, youth self-efficacy

Sydney Sloane (she/elle) is a disabled law student at the University of Ottawa with both ADHD and a brain injury. She is an award winning advocate who focuses on anti-ableism, disability justice, universal design, and allyship. Her undergraduate research focused primarily on the gendered inequities in health science research, particularly when it came to disabilities. Now, as a law student, she is focusing her studies in administrative and employment law so that she may better represent those who have been discriminated against, especially due to disability. Sydney was formerly the inaugural Disability and Accessibility Peer Assistant at the Brock University Student Justice Centre and has previously volunteered as a Youth Accessibility Leader with the federal government, on the Student Wellness and Accessibility Advisory Panel at her university, and with the HeadsupCAN Advocates program. Sydney’s academic background, work history, and personal experience have given her a holistic view of moving through school, healthcare, work, the government, and now the law as a disabled person. She full-heartedly believes in “nothing about us, without us” and seeks to advance social justice and disability justice in all spaces she enters. She is fun, relatable, passionate, and engaging, and she looks forward to working with you to find a deliverable that meets your needs!

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Invisible Disability (Fibromyalgia, Rheumatoid Arthritis), Learning Disability

Self-advocacy, Accommodations, EDI, Intersectionality, BIPOC Perspectives on Disability and Neurodivergence

Anjaliya Sonnilal (she/her/elle) is a queer, disabled, and BIPOC woman from Mississauga, Ontario. Sonnilal has spent 7+ year in advocacy related roles and positions, with experience in providing EDI trainings for 100+ undergraduate students across the province. From her own personal experience, Sonnilal emphasizes the importance of intersectionality in regards to advocacy and accessibility services, with the aim of destigmatizing disability and neurodivergence in learning and working environments. Sonnilal current sits on the EDI Advisory Committee for the Faculty of Engineering at the University of Ottawa, and has previous experience in advocacy roles as the Vice President of Equity for the Science Student Association, Equity Commissioner for the Engineering Student Societies’ Council of Ontario, EDI Facilitator for Tri Delta, and member of the first student-led EDI round-table established at the University of Ottawa. Sonnilal is a current Master of Science in Systems Science and Engineering student at the University of Ottawa, where she has also obtained a Bachelor of Applied Science in Chemical Engineering, and a Honours Bachelor of Science in Biochemistry. Her thesis is focused on hybrid learning technologies in higher education for accessible education.

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Neurodivergence (ADHD)

neurodivergence, legislation, intersectionality, EDI

Quanah Traviss (he/him) is a Mohawk student from Kingston Ontario with professional experience and a passion for Indigenous Advocacy and Youth Engagement. Throughout his life Quanah has struggled with ADHD, but only recently received a diagnosis and began exploring solutions and strategies to learn how to live with the day-to-day challenges of neurodivergence. Now a student at the University of Ottawa, Quanah has spent the last two years expanding his advocacy skills and network, and hopes to do more advocacy for Indigenous peoples with neurodivergence and disabilities.

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Neurodivergence (Autism), Mobility Aid User (Wheelchair)

DEI, Accessibility Training and Consulting, Project/Change Management, Program Design, Course Development and Delivery, Anti-Racism/Anti-Oppression, Diversity Training and Facilitation, Qualitative/Co-Designed Research

Logan (He/Him/His) identifies as a trans, bi-racial, Autistic wheelchair user. As an Equity, Diversity, and Inclusion Consultant, he works from a trans-inclusive feminist, anti-colonial, anti-racist, and anti-oppressive framework. Logan has dedicated his career as a social worker to work within the equity space conducting training, writing equity-focused policies/proposals, and supporting the creation, implementation, and sustainability of diverse, equitable and inclusive workplace cultures. Logan is the owner and operator of IDEAA Perspectives – Training & Consulting and has worked with many organizations across the Greater Toronto Area including ARCH Disability Law Centre & The Holland Bloorview Kids Rehabilitation Hospital.

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